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Woman speaks out against campaign comparing people with Down syndrome to animals

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People with Down syndrome and their parents are speaking out against a campaign to get people living with the syndrome added to the endangered species list.

Ben Tarr, a board member with the Canadian Down syndrome society, admits that the campaign is “edgy,” but he is adamant that people living with the syndrome should be on the list compiled by the International Union for the Conservation of Nature.

Tarr could not provide statistics about the number of women in Canada who choose to terminate their pregnancies after receiving a positive test for Down syndrome.

But even in the absence of those numbers, he believes there’s a move afoot to eradicate Down syndrome births.

“We`re actually about to embark on a research project here with the University of Toronto where we`ll be able to get some more information about the community here in Canada,” Tarr told CBC Toronto.

“For us as an organization, it’s about supporting people in the decision making that they need to go through. It`s about providing information and ensuring they have the right information that they need for them.”

I don’t like people comparing me as an animal, it’s not fair.– Francie Munoz

Convinced of a move to eradicate Down syndrome births, Tarr said to mark Down
Syndrome Awareness week this year, the society is applying to be the first people on the endangered species list.

“So we’ve actually submitted an application to the International Union for Conservation of Nature and we’re looking to be the first human species on their list,” Tarr said.

“The reason for that is, really, we’re looking to garner support. You know, when you look at the population size of those living with Down syndrome, what’s endangered is actually the support that we get.”

Ben Tarr, a board member with the Canadian Down Syndrome Society, says people living with Down syndrome should be on the ‘endangered’ list. (Grant Linton/CBC)

But Francie Munoz, a woman with Down syndrome, disapproves of the campaign, saying it compares people with Down syndrome with animals.

She says what she wants is respect and to be able to live her life like anybody else.

“It doesn’t matter who you are … I don’t like people comparing me as an animal, it’s not fair,” Munoz told CBC Toronto.

“Love us for who we are, not a character, not an animal.”

Munoz was thrown into the spotlight in 2017 when two police officers were caught on dashcam footage mocking her during a traffic stop, describing her as disfigured and something less than a whole person.

The two officers were charged with offences under the Police Services Act.

Munoz’s father, Carlos Munoz, says while he appreciates the message the Canadian Down Syndrome Society is trying to convey, he believes they are taking the wrong approach. 

“In my opinion, this type of campaign, personally as a father, I don’t subscribe that much to it. I subscribe to the message itself, not the way … it was presented,” he told CBC Toronto.

As cute as a polar bear can be, I don’t think that anybody should be making that comparison in that sense.– Carlos Munoz

“The parents I have talked to do not appreciate the fact that our children are being compared to animals. As cute as a polar bear can be, I don’t think that anybody should be making that comparison in that sense.”

He said while the campaign might be sparking conversation, it’s mostly among people within the Down syndrome community, discussing whether they approve or disapprove.

Carlos Munoz, Francie Munoz’s father, says while he appreciates the message the Canadian Down Syndrome Society is trying to convey, he believes they are taking the wrong approach. (Grant Linton/CBC)

But Tarr said the society is moving ahead with the campaign to ensure they have a seat at the table to talk about “massively important issues” to the community.  

He pointed to issues such as employment, housing, and education.

“When you think about animals on [the endangered] list, we spend a lot of energy and time protecting and making sure those animals are able to thrive, and we want to do that for the Down syndrome community,” Tarr said.

“We want to make sure that our community can thrive in life.”

Tarr, who has a son with Down syndrome, says he worries about all the things that any parent would worry about — their child’s happiness, their child’s ability to learn, to grow, to develop into the character that they’re going to become.

He said people outside of the Down syndrome community still have a lot of opportunity to help.

“When you think about all the employers out there, you think about people like government that deal with housing and funding; there’s so much that this community of amazing people can offer and that’s what we’re really looking for.”



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Natural Whipped Body Butter Recipe

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diy natural body butter recipe homemade gift

I love making natural beauty products as gifts, and homemade body butter is one friends and family always love to receive. It’s a gift that is easy to personalize with custom natural scents (and even can help with sleep if you add a little magnesium!).

Put the finished product in a cute glass jar with ribbon and a tag, and you have a thoughtful and beautiful gift that will make them feel pampered for months.

Even if you aren’t typically the type to make your own gifts, this recipe is easy for DIY beginners and fun to make. Give it a try!

Why Body Butter?

Body butter is thicker than lotion and contains less water. This means it takes longer to penetrate the skin (don’t walk on a floor barefoot after applying body butter to your feet!) but it’s very moisturizing and softens even those tougher, very dry spots like the knees, elbows, and feet.

By whipping body butter, you get the best of both worlds since it is soft and easy to apply but still extra moisturizing.

How to Make Body Butter

This new recipe has similar ingredients to these homemade lotion bars, but removes the beeswax and whips the mixture as it cools to create a cloud-like lotion that is extremely nourishing!

This body butter is great for babies or sensitive skin, and scents can be added to make it a custom gift for anyone (or to keep for yourself!).

My current favorite is a peppermint-scented version for the holidays, but I also like a citrus/lavender combination.

Homemade Whipped Body Butter Recipe

The combination of shea and cocoa butter with two nourishing oils makes a highly moisturizing combination, but whipping the mix helps it go on smoothly without being oily.

Body Butter Ingredients

Optional: Cocoa butter, shea butter, and mango butter are all interchangeable in this recipe. If you only have one or two on hand, feel free to substitute or play with different proportions.

Body Butter Instructions

  1. In a double boiler or glass bowl, combine all ingredients except essential oils.
  2. Bring to medium heat and stir constantly until all ingredients are melted.
  3. Remove from heat and let cool slightly. Add essential oils if using.
  4. Move to fridge and let cool another hour or until starting to harden around the edges but still somewhat soft.
  5. Use a hand mixer to whip for 10 minutes until fluffy.
  6. Return to the fridge for 10-15 minutes to set.
  7. Store in a glass jar with a lid and use as you would regular lotion or body butter. If your home stays above 75 degrees, it may soften and need to be kept at the fridge, but it will stay whipped at a temperature lower than that.
  8. Keep for yourself, or give away! Enjoy!

Body Butter FAQ

This recipe has been around for a while, so here are some of the questions you’ve asked the most:

Will it be greasy?

Body butter is definitely more emollient and has a heavier texture than lotion does, but after a few minutes it will penetrate the skin and lose any greasy feel.

How long will it last?

Stored away from moisture and light this homemade body butter should last 6-8 months. Using a spoon or spatula to dip rather than your fingers will extend the life of the body butter.

Why is mine not white like yours?

Shea butter especially can vary in texture and color depending on the brand. Not to worry, it will still work just as well!

Will this clog my pores?

Nope! This body butter actually did wonders on my cystic acne back in the day.

Other Body Butter Variations

Mastered the recipe? Try mixing up your own combinations! Here are some ideas to get you started:

Ever made your own body butter? Want to try this recipe? Share below!

How to make simple and luxurious whipped body butter with shea butter and natural oil



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Canada’s first successful heart transplant was 50 years ago this week. Here’s how it happened

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In mid-November 1968, a team of cardiologists at St. Michael’s Hospital received a call they had been waiting on for months.

An 18-year-old man had been badly injured in an accident, they learned. He was ruled brain dead, but his heart was still beating.

It was a tragedy that set into motion the first successful heart transplant in Canadian history, which marks its 50th anniversary on Saturday.

“We never had any hesitation,” said Dr. John K. Wilson, now 93. “We were ready. The team was ready.”

A year earlier, in 1967, Wilson had identified a potential recipient for a heart transplant, Charles Perrin Johnston, who had been suffering from heart failure and appeared headed toward an early death.

“I told him at the time, almost facetiously, ‘Hey, maybe we can give you a new heart in a year’s time,'” Wilson remembers telling Perrin Johnston.

Charles Perrin Johnston lived for six years after receiving a new heart in 1968. At the time of his death, no transplant recipient had lived longer. (St. Michael’s Hospital)

The golden age of cardiology

In December 1967, the South African doctor Christiaan Barnard performed the world’s first human-to-human heart transplant — an earlier transplant had been attempted using a chimpanzee heart — though the recipient lived for just 18 days after the surgery.

In Canada, several hospitals were jockeying to become the first to replicate the operation, though early attempts were met with fast deaths or incapacitated patients.

In May of 1968, Albert Murphy became the first Canadian to receive a new heart, though he died within hours of the operation, performed at the Montreal Heart Institute.

In the following months, Toronto General and Toronto Western hospitals also attempted heart transplants, though none of the patients recovered.

In the wake of multiple failures and amidst a growing media frenzy around the race between the three Toronto hospitals, the team at St. Michael’s took their shot at the potentially life-saving operation on Nov. 17, 1968.

The transplant was to be performed by Dr. Clare Baker, with Wilson providing support during Perrin Johnston’s recovery.

Dr. Clare Baker was the surgeon who carried out the operation. Baker died in 2010. (St. Michael’s Hospital)

“We had to have confidence. And if anybody gave the image of being a confident performer, a confident surgeon, a capable surgeon, it was Dr. Clare Baker,” Wilson remembered about his colleague, who died in 2010.

That confidence and preparation ultimately translated into a successful surgery.

“He left the operating room like any other patient, with a beating heart,” Wilson said.

Perrin Johnston went on to live six years with his new heart. At the time of his death, he was the longest lived male heart transplant recipient in the world.

When doctors later asked him how they did it, “maybe we said more prayers at St. Michael’s Hospital,” Wilson would say with a laugh.

Surgery inspired future doctors

Shortly after Perrin Johnston’s transplant, Dr. Robert Chisholm arrived at St. Michael’s as a medical student. He says the experience of watching Dr. Wilson and Dr. Baker during their breakthrough years altered the course of his career.

“That two month experienced changed my life,” said Chisholm, who started his tenure at St. Mike’s without a medical specialty. He has now worked as a cardiologist at the hospital since the 1970s.

“It was a very exciting time because the world was kind of watching us,” he added. “We had pretty good success in those early days.”

Dr. Robert Chisholm worked with Dr. John K. Wilson and Dr. Clare Baker as a student in the late 1960s. The experience inspired him to pursue a speciality in cardiology. (Martin Trainor/CBC)

While the techniques used in cardiology have advanced considerably since the 1960s, Chisholm says the approach taken by Wilson and Baker should serve as a powerful lesson to their modern contemporaries.

“The key to their success, I think, was judgment,” he said. “And that still applies today.”

Failed surgeries following breakthrough

Following Perrin Johnston’s surgery, Baker, Wilson and the St. Michael’s cardiology team travelled around the world, sharing their findings at medical conferences filled with doctors still struggling to perform the operation.

In total, Wilson and the team carried out five heart transplants at St. Michael’s, though the last two were unsuccessful.

They stopped performing transplants after those failures, due to advancements in other areas of cardiology and a need for anti-rejection medications that were not yet developed.

Still, Wilson looks back fondly on his years at the cutting edge of the specialty, knowing that his team’s success informed the work of doctors around the world, and elevated the profile of his hospital as a result.

“We were pretty proud that we were able to present a successful transplant,” he said. “We showed that it can be done.”

According to the latest figures from the Canadian Institute for Health Information, 170 Canadian received heart transplants in 2015.



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Trying to bridge the ‘genomic divide’: Lack of Indigenous data a challenge for researchers

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A prominent U.S. senator turned to genetic testing last month to try to prove her claim that she had Indigenous ancestry.

But in assessing Elizabeth Warren’s DNA, the geneticists were forced to use samples from Mexico, Peru and Colombia because there were no samples from American Indigenous peoples in the reference databases. 

Because the data is missing, Indigenous geneticists Krystal Tsosie of Vanderbilt University and Matthew Anderson of Ohio State University argue that Warren’s test results, which showed Native American ancestry six to 10 generations ago, are a reach.

Many more researchers have joined the discussion regarding Warren’s DNA test results, weighing in on the problems inherent in using genetic databases to unearth Indigenous ancestry.

Indigenous data is missing because “Native American groups within the U.S. have not chosen to participate in recent population genetic studies,” wrote Carlos Bustamante, the geneticist studying Warren’s DNA. That information gap for Indigenous groups exists around the world, including Canada. 

“The Warren news was a distraction from the real work,” said Laura Arbour, one of the lead scientists for the Silent Genome project recently funded by Genome Canada and Genome British Columbia. 

Arbour and her colleagues are trying to develop strategies to better engage Indigenous communities in genomic research.

She describes a growing “genomic divide” that reflects the apparently insatiable appetite among people with a European background to give their DNA to large databases in return for predictions regarding future health and well-being.

Precision medicine

Bridging this “genomic divide” will allow Indigenous people to benefit from a future with precision medicine, says Arbour.

The term precision medicine refers to the use of genomic data to predict which drug will work best for each person.

But precision medicine cannot serve Indigenous people if their reference data is missing.

The lack of representation of Indigenous genomes in large databases reflects a general wariness in that group caused in part by historical cases of genetic research gone wrong. 

One study considered by leading geneticists including Roderick McInnes, former institute director in the Canadian Institutes of Health Research, as a game changer involved the Nuu-chah-nulth First Nations on Vancouver Island.

The Nuu-chah-nulth have a high frequency of rheumatoid arthritis. The research team collected DNA samples from approximately half of the First Nations members to study the genetic basis for the disorder.

The genetic determinants of rheumatoid arthritis weren’t found, but that wasn’t the big problem. Researchers sent the DNA samples to external facilities for genetic ancestry studies without the knowledge or consent of the participants.

That action created concern around privacy and possible exploitation through the use of the genetic data for commercial gain, Tsosie and Anderson wrote in a piece posted on The Conversation.

Positive relationships

On the other hand, there are examples of positive relationships between Indigenous groups and non-Indigenous genetic researchers. 

Members of the Gitxsan nation in British Columbia, for instance, told Arbour and her colleagues about the high prevalence of sudden cardiac death in their community.

The Gitxsan not only initiated the research into the genetic cause for this disease but also helped supervise the work through advisory and governance committees.

When geneticists were assessing U.S. Senator Elizabeth Warren’s DNA, they had to use samples from Mexico, Peru and Colombia because there were no samples from American Indigenous peoples in the reference databases. (Charles Krupa/Associated Press)

With that co-operative relationship, the research team found the genetic basis for the prevalence of Long QT syndrome, which can cause sudden cardiac death, in the Gitxsan. A gene mutation was found to be responsible for disrupting normal cardiac rhythm. The Gitxsan could then be effectively treated for Long QT syndrome after that discovery.  

Arbour also sees a need to customize the practices for DNA collection in Indigenous communities so that they maintain control.

One little-known aspect about most genetic testing projects, such as the 1000 Genomes Project or 23andMe, is that they, not the donor, retain ownership of the sample.

Indigenous leaders don’t want this to happen in studies of their people.

DNA obtained from an Indigenous individual should be considered “on loan” to the researcher just for the purpose of the specific research project, says Arbour. Ownership of the sample should be retained by the individual with the future potential to be stored in a “tribal-controlled DNA bank,” she says.

Calls for Indigenous leadership

Indigenous leaders have long recognized the need for Indigenous scientists to take ownership of the research conducted with their DNA.

Writing in the Hill Times last month, Natan Obed, president of the Inuit Tapiriit Kanatami, a national, non-profiit organization representing 60,000 Inuit, said that “Inuit are the most researched people in the world — yet with colonial approaches to research … our role is imagined as marginal and of little value.”

He also recently renewed his call for Inuit leadership in the three major Canadian research agencies: the Canadian Institutes of Health Research, the Natural Sciences and Engineering Research Council of Canada and the Social Sciences and Humanities Research Council of Canada.  

Laura Arbour, one of the lead scientists for the Silent Genome project recently funded by Genome Canada and Genome British Columbia, and her colleagues are trying to develop strategies to better engage Indigenous communities in genomic research. (Brad Lyle, Genome BC)    

Building capacity for Indigenous leadership in genomic research takes time. 

But real change could come through the work of programs like SING, which stands for the Summer Internship for Indigenous Peoples in Genomics.

This educational program initiated at the University of Illinois Urbana-Champaign in 2011 and sponsored by multiple agencies including the National Institutes of Health was geared primarily for Indigenous students in a university undergraduate or graduate degree program in the U.S. but has since spread to Canada and New Zealand. 

The SING workshops aim to give Indigenous students interested in genetic science additional skills and knowledge that would help them move into advisory and leadership roles within genetic research. The workshops of approximately 20 participants have been held annually at multiple U.S. university venues, most recently in Seattle earlier this year.

Katrina Claw, a former SING participant and now a leader of the program in the U.S., says there have been participants from 44 First Nations, including mostly students who are interested in genomic, social and political sciences. 

The SING training workshops include basic scientific methods in DNA sequencing and analysis along with tutorials on the principles of informed consent and ethics relating to DNA data sharing. 

Faculty positions

The Indigenous leader of SING Canada, Kim TallBear, an associate professor in the Faculty of Native Studies at the University of Alberta, says that genomics research must also be taught with the view of correcting the history of disciplinary mistakes made by scientists.

A significant proportion of SING participants enter the program with a background in genomic science or the social and political sciences and with the intention of learning about Indigenous genomics from a “bioethical and decolonizational perspective,” said TallBear.

The goal of the SING workshops is starting to be realized. According to TallBear, Anderson is another great example of someone of Indigenous descent who started with SING as a graduate student, came up through the ranks to become an assistant professor and is already leading discussions around genomic research in Indigenous communities.



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